There hasn't been much to report on Chet's condition, which is a good thing. He has remained pretty steady and healthy. The only outward symptom of his PNH is all the peticiai all over his legs. I am planning on taking him in for counts on Thursday to see where he is at, and his next appointment at St. Jude is on the 26th. He is due for a marrow aspiration, so I am not sure at this point how long we will be there.
He has been working hard on getting all of his chess pieces made, and will be working on his board next week. This has been an exciting process for him, and I can't wait to see the finished product.
School started again, which has left him a bit tired, but so far he hasn't picked up any bugs or been extremely exhausted. Yay!
His birthday is coming up in a couple of weeks. I have been browsing different chess sites trying to decide what to get him. He wants a chess game that he can play on his laptop as well, and I haven't had a chance to start looking for those.
I will post on Thursday when we know what his counts are now, but thought I would just update you all and let you know that right now he is doing pretty well!
On a side note, I posted the song below from the Hillsong band and I posted the video of the lead singer's cancer story. Sadly, his entire story was a hoax. He lied to his wife, his parents, his church, his fans, and the people he was evangelizing to. At first I was rather angry when I heard about it, but now I am simply sad for him. I cannot fathom why somebody would literally LIVE a lie like this when it is such a nightmare for those who are truly living through these terrible diseases, but I do think he probably needs a sort of healing that medical practitioners cannot provide.
No comments:
Post a Comment