Sunday, April 20, 2008
Thursday, April 17, 2008
When I last blogged, I told you about trying to follow the ambulance across Arkansas. Jack was driving down to meet us in Conway to bring me Beth and some clothes, and I snapped this shot of Chet in the ambulance as we waited for him. They had him buckled in completely, which made me feel a little better knowing he was flying down the road at approximately 100mph!
These are the pictures from the IV lesson the social worker came to give Chet. Although he wasn't a very cooperative student at first, it really did help the next morning when he had to have an IV re-inserted.
The frog became a major source of entertainment the rest of the time we were there. That evening, Chet had thrown it too high and it stuck on the ceiling. I am not tall enough to reach it even when I stood on a chair, and it was too sticky to be able to just knock it off the ceiling, so we did the only thing we could and left it there. We laughed and joked about what the housekeepers were going to think when they saw the frog, we kept reminding each other the frog was watching everything we did, and generally had fun with in a goofy, bored sort of way... lol. It took a few days for that frog to finally fall off the ceiling.
On St. Patty's morning Chet went back in for another marrow aspiration, and as you can see, he was a bit reluctant to be there. Actually, what he really doesn't like (other than the IV) is that he cannot eat before the appointment due to the anesthesia.
This is Chet's primary medical specialist, Martha. She is wonderful. I can call her anytime with questions or problems, and she gave me her direct number if we have anymore emergencies so we don't have to try to coordinate information with the residents on call and any local ER docs we are seeing. When Chet goes in for the aspirations, I can stay in the room with him right up until he falls asleep from the anesthesia. It makes it a lot easier to leave that room knowing my baby is in such good hands.
After his recovery time, the kids wanted to go on the hunt for the Pot of Gold the hospital was having. We found all five shamrocks with clues to the next station, and at the end we found a pot full of a rainbow of playdough. Chet picked green and gold... lol... because they are the color of money.
Beth went with pink and purple, one for her and one for Faith. She was really cute the whole time we were there, saving something from everyday for one of her siblings when she got home. She had a marker for Kyle, the playdough for Faith, a book for Todd, and a snack for Matt.
Chet spent most of the rest of the afternoon recovering in the game room. He was a little more sore this time than last, but other than that he didn't have any lingering problems from the aspitation.
We had a couple of days to wait for the test results over the weekend and on Saturday we just wanted out of the hotel for a little while. We are huge Food Network nerds, and we found out the Neely's BBQ is literally around the corner from St. Jude. We had to go eat there. Afterwards, we stopped at the grocery store and got some water and snacks, and by then Chet was feeling pretty tired so we headed back.
On Sunday we went in for another urine test to check for blood, and it was completely clear. Woohoo!
We drove home that night through some serious weather. There were thunderstorms, tornado warnings, and major floods in all of the counties as we headed north. We made it home safe and sound, and waited to see what would happen next. So far, he has done remarkably well. He has't had anymore pancreaitis, he has energy, and best of all his platelet count is up to 64,000. The nature of this disease is that you cannot predict what will happen or when. There are sudden attacks, and then sudden recoveries. Martha said, "The only thing we know for sure is that he is unpredictable." So for now, we are thanking God (power of prayer, Baby!) and celebrating every minute he is feeling and looking good. He started bruising again last week, which worried me, but this time he was bruising because he had actually bumped his arm on something. I guess we can let him do that occasionally... :0)