Thursday, September 11, 2008

Give the gift of life... it is literally within you.

Today is a blood drive at my church. Giving blood is free. It saves lives. Please go to a local blood drive or your local blood bank and donate. Be a part of that life-saving gift. And until the 22nd of this month (which happens to be Chet's birthday) the National Marrow Donor Registry is waiving the fees to register to become a registered bone marrow donor. Please don't overthink this. To be a donor is simple. If you are ever called to be a donor, it does not hurt the way you may have been lead to believe it does. You are sore for a day or two. You go home the same day you donate. You spend the rest of your life knowing you made a difference. You can save lives. You can use your marrow to restore health to somebody who has no other alternative. Please, get involved. Click here for more information.

It looks like you can't follow a link directly to the sponsored page. I called NMDR, and Sherry told me we have to follow a certain path for it to be free because of their security issues to avoid hacking.

First go to

On the right side of the screen, under the cord blood box is a box that says "Events" Click on the link that says "Nascar Foundation Drive." About 3/4 of the way down that page, you will click on "join online now." Then finish filling in the paperwork and the Promo Code will automatically generate. I know it is a couple of extra clicks, but please don't let that deter you from joining!!

Tuesday, September 9, 2008

Hi there

There hasn't been much to report on Chet's condition, which is a good thing. He has remained pretty steady and healthy. The only outward symptom of his PNH is all the peticiai all over his legs. I am planning on taking him in for counts on Thursday to see where he is at, and his next appointment at St. Jude is on the 26th. He is due for a marrow aspiration, so I am not sure at this point how long we will be there.

He has been working hard on getting all of his chess pieces made, and will be working on his board next week. This has been an exciting process for him, and I can't wait to see the finished product.

School started again, which has left him a bit tired, but so far he hasn't picked up any bugs or been extremely exhausted. Yay!

His birthday is coming up in a couple of weeks. I have been browsing different chess sites trying to decide what to get him. He wants a chess game that he can play on his laptop as well, and I haven't had a chance to start looking for those.

I will post on Thursday when we know what his counts are now, but thought I would just update you all and let you know that right now he is doing pretty well!

On a side note, I posted the song below from the Hillsong band and I posted the video of the lead singer's cancer story. Sadly, his entire story was a hoax. He lied to his wife, his parents, his church, his fans, and the people he was evangelizing to. At first I was rather angry when I heard about it, but now I am simply sad for him. I cannot fathom why somebody would literally LIVE a lie like this when it is such a nightmare for those who are truly living through these terrible diseases, but I do think he probably needs a sort of healing that medical practitioners cannot provide.